Sufjan Stevens revealed today that he has been diagnosed with a rare autoimmune condition known as Guillian-Barre Syndrome. In an emotional new Instagram post, Stevens updated fans about why he’s been distant from the release of his upcoming album, Javelin.
The musician has been in the hospital, after losing the ability to walk. “Luckily there’s treatment for this — they administer immuno-hemoglobin infusions for five days and pray that the disease doesn’t spread to the lungs, heart and brain,” he assured fans. “Very scary, but it worked. I spent about two weeks in Med/Surg, stuck in a bed, while my doctors did all the things to keep me alive and stabilize my condition. I owe them my life.”
Stevens has since been moved to an acute rehab a few weeks ago, where he is undergoing physical and occupational therapy to learn how to walk again.
“It’s a slow process, but they say I will ‘recover,’ it just takes a lot of time, patience, and hard work,” he added. “Most people who have GBS learn to walk again on their own within a year, so I am hopeful. I’m only in my second week of rehab but it is going really well and I am working really hard to get back on my feet.”
Check out Sufjan Stevens’ full post below.
“Hi Friends. Quick update on my life. I’m very excited about having new music to share, but I just wanted to let you know that one of the reasons why I haven’t been able to participate in the press and promotion leading up to the release of Javelin is bc I am in the hospital. Last month I woke up one morning and couldn’t walk. My hands, arms and legs were numb and tingling and I had no strength, no feeling, no mobility. My brother drove me to the ER and after a series of tests–MRIs, EMGs, cat scans, X-rays, spinal taps (!), echo-cardiograms, etc.–the neurologists diagnosed me with an auto immune disorder called Guillian-Barre Syndrome. Luckily there’s treatment for this — they administer immuno-hemoglobin infusions for five days and pray that the disease doesn’t spread to the lungs, heart and brain. Very scary, but it worked. I spent about two weeks in Med/Surg, stuck in a bed, while my doctors did all the things to keep me alive and stabilize my condition. I owe them my life.
On September 8, I was transferred to acute rehab, where I am now undergoing intensive physical therapy/occupational therapy, strength building etc. to get my body back in shape and to learn to walk again. It’s a slow process, but they say I will ‘recover,’ it just takes a lot of time, patience, and hard work. Most people who have GBS learn to walk again on their own within a year, so I am hopeful. I’m only in my second week of rehab but it is going really well and I am working really hard to get back on my feet. I’m committed to getting better, I’m in good spirits, and I’m surrounded by a really great team. I want to be well!
I’ll keep you posted as I progress. Thank you for your thoughts and prayers. And a huge shout out to all the incredible caretakers of the world working night and day to help us heal. They are living saints.
Be well, be joyful, stay sane, stay safe. I love you.
yours truly from a wheelchair XOXOXO Sufjan Stevens.”
